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Patient Reported Outcome Measures (PROMS)
for Neurotransmitter Related Disorders

Dear Participant, 

Thank you for participation in the Neurotransmitter related disorders PROMS questionnaire.  We want to better understand the experience of patients, families and care-givers face with neurotransmitter-related disorders. Through your involvement in this PROMS questionnaire, you will be able to directly inform clinicians and researchers how well key symptoms are managed and any symptoms/ problems you feel that are not addressed. Your input will help shape and impact research directions in the field, to improve care and treatment for all affected individuals, from clinical aspects to laboratory research to developing clinical trials of new treatments for neurotransmitter-related disorders.

The questionair takes approximately 30-40 minutes to complete.

The PROMS questionnaire is available in a version for patients and a version for caregivers.

Please select the suitable version in your language: